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“Huntington’s Disease is a family disease. When someone in the family has it, everyone becomes involved – parents, grandparents, aunties and uncles, sons and daughters. Everybody’s lives change.

Young people have to come to terms with the fact that their mother or father or grandparent is not like most other people. They have a condition that is incurable, gets progressively worse and can be passed on through the generations.

This book acknowledges what young people experience and how they feel. It provides information about HD and offers strategies for coping with immediate and long-term challenges.

Their stories show that the experience of coping with HD is not all negative. Young people in HD families gain strength and courage. They learn to face the present and the future with love, acceptance, compassion and hope. This book is an essential guide for that journey – for both young people and adults.”