Rare Conditions Register

Connecting with a family

Sometimes we are not able to connect a family with a support parent who has a child with a similar condition, and we need to search further afield. We are currently looking for contacts for the following conditions.

If you are able to be a support contact for any of these families, please contact our support parent and information team on 0508 236 236.

Also in this section

Ask us a question
Send us a quick message and we'll be in touch to assist as soon as possible.